Alexis Senge JohnsonThere are days when I just can’t roll out of bed and put on that happy face. Days when my battle with Fibromyalgia makes me feel as if it’s winning and getting the best out of me. Recently I was really lucky to be able to pick up more than a full week’s worth of work. It was a blessing and a curse all at once. Working an intense week full of doubles and strange hours is the perfect combination that leads to not being able to move at all when it’s all done and that’s exactly where I am at right now.
I don’t hide the fact that I have Fibromyalgia, but since I don’t look as if there is anything wrong with me most people have no idea what’s going on. None of my fellow managers know about it, so its been difficult some days to keep up with them when my schedule is reaching near sixty hours. It’s been something that from the point of diagnosis has been difficult to explain to my family and friends. Just last week I stumbled upon a great post written by a gal who is battling lupus. Many others who are battling forms of chronic pain have adopted “The Spoon Theory” that she wrote about and I can see why. She might have just found the best way to explain to people on the outside what a day is like in our skin.
For those of my friends and family who have still been trying to understand what a day is like in my shoes, I ask you to take a few minutes out of your day and read Christine’s posting at butyoudontlooksick.com. Granted she has lupus and each day for her is a much larger battle than it is for me, but it will give you insight about what it is like on those days when I have to cancel plans because I just can’t leave the house. Living with Fibromyalgia is similar in theory and if I use up all my spoons, as Christine explains in her post, then I’ll be short later in the week and paying for it.
